I wouldn’t necessarily call myself a private person, but I’ve struggled at times to put my experiences and perspectives in writing, not knowing what type of response I might receive. I’ve written about a few regrets I have, and I regularly visit my many weaknesses and vulnerabilities. Sometimes I open up a bit and wonder if I shouldn’t have. In the end, I’m usually glad I did.
Tag: alzheimer’s
The Prime Time in Dementialand (and Why You Don’t Want to Listen to Me Lecture at 2pm)
When I was a teenager, my mom bought me a nightshirt that said “Perky Morning People Should be Shot” across the front. Looking back, that statement was a bit harsh, but I often threw a fit (aimed at my mother) about having to get up early in the morning. And I wore that nightshirt until […]
The Miracle and/or Science of Music in Dementialand
After returning from a vacation that involved my husband and me driving halfway across the country (literally–from Iowa to South Carolina) and back again, I am more amazed than ever at the miracle of GPS (aka Global Positioning System). I know GPS is nothing new, but as it becomes more advanced–for instance, telling us when […]
Mean Listening Face in Dementialand (or the Importance of Non-Verbal Communication)
I was diagnosed by my husband as having an affliction called Mean Listening Face about four years ago. A college student that I had in class previously was at our house for pizza. She was telling me about how she had recently applied for a few positions at non-profit agencies. She looked at me and […]
Conferencing in Dementialand (or What You Learn by Observing Minglers)
I’ve spent the last few days at the Alzheimer’s Association International Conference in Washington, DC. You may have seen some news articles discussing the research that was presented at the conference. Although the conference had some research on psychosocial therapies and technologies to help people with dementia, it’s not surprising that perhaps that biggest headline […]
Welcome to the Real and Non-Perfect Dementialand World (and What to Say if You Want to Make Me Super Angry)
I overheard a bunch of people chatting before a support group meeting. There was a middle-aged guy updating some other family care partners about his wife with dementia. I need to tell you that I am going to change a few details here so this person isn’t as identifiable. It’s pretty typical that I do […]
Following Up in Dementialand
Several months ago I wrote a blog post about why I dislike the movie, The Notebook. In short, I take issue with how it presents Alzheimer’s. On an unrelated note, I think it promotes stalking as romance. You can read all about it here: https://welcometodementialand.wordpress.com/2015/03/09/my-least-favorite-dementialand-movie/ I had no idea the Facebook messages and emails I would get after this […]
Praying for the End in Dementialand
I was 23 when my grandpa passed away. He had a lot of chronic health conditions, including diabetes, and he’d recently had a leg amputated. The last time I saw him in person, he kept calling the guy I was dating at the time “Steve” (although his name was not Steve) and he was very grateful […]
Friendship Inside (and Outside) Dementialand
A wonderful former student of mine now works at a memory care community. A woman with Alzheimer’s, Angela, moved into the facility. To the rest of the world, Angela lost her husband to cancer about ten years ago. In Angela’s world, her husband had past away last week. As you might expect with someone who lost the […]
Contradictory Advice in Dementialand
I was recently talking to someone who worked at the Alzheimer’s Association about some of the challenges of working with families and individuals affected by dementia. I mentioned that I feel like I give people contradictory advice. First, I tell them to live in the moment. Second, I tell them to plan for the future. […]
