The Good Life in Dementialand

I met a woman at an event who told me that when she was diagnosed with Alzheimer’s she was given one and only one piece of advice from her doctor. It was that she shouldn’t let anyone put in a feeding tube when she reached the end-stage of the disease. REALLY?!?!? I am generally not a fan of feeding tubes in most case of end-stage Alzheimer’s, but that’s irrelevant. … Continue reading The Good Life in Dementialand

Passion in Dementialand (A Post About What Gets Us Excited)

A little passion goes a long way. I’m not talking about relationships here. I’m talking about life. No one has passion for everything they do. We all have to do things that we don’t like doing. That’s part of living in the real world. But we gotta have passion for something or we’re sunk. My passion is dementia. I don’t like dementia itself. In fact, I … Continue reading Passion in Dementialand (A Post About What Gets Us Excited)

Choices in Dementialand (aka Confessions of a Spoiled Dinner Brat)

At any given time, there are several blog posts in my “drafts” that I haven’t published. Sometimes they aren’t published because I think they are poorly-written and need some polishing. Once in a while I hold something back because I haven’t quite found the right words to explain what I want to explain. And then there are a few that I haven’t published because they … Continue reading Choices in Dementialand (aka Confessions of a Spoiled Dinner Brat)

The B Word in Dementialand

Burden. It means hardship, mental weight, or strain. It’s a word caregivers at dementia support groups dance around awkwardly. Caregivers vent. They talk about their lack of privacy or their dearth of support. They discuss their frustrations and challenges. They say they have no time to care for their own health or spend with friends. Every once in while, someone cries. But then it usually … Continue reading The B Word in Dementialand

Forgetting Your Manners (Among Other Things) in Dementialand

Several years ago, I was sitting with a group of individuals who had recently been diagnosed with Alzheimer’s. I don’t spend a lot of time with people in the early stages of the disease. Many of the people with Alzheimer’s that I talk to are past the point where they are able to tell me what it’s like to have Alzheimer’s. Although I had been … Continue reading Forgetting Your Manners (Among Other Things) in Dementialand